SickKids VS Campaign Shoot
COMING SOON! Until the new campaign launches I've been sworn to secrecy but to keep posts in chronological order I'm publishing this as a...
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BENJAMIN THE BRAVE
Follow the adventures of our little superhero as he battles rare disease and cancer, LCH.
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About Benjamin
At the age of 4, Benjamin was diagnosed with Langerhans Cell Histiocytosis (LCH), a rare disease that is also classified as cancer.
Benjamin is truly an inspiring little superhero. He treats every hospital visit like a special adventure and is best known for being happy, positive, kind, affectionate, enthusiastic, inclusive and for the wonderful sense of humour that pairs perfectly with his big smile and contagious laugh.
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After his diagnosis my aunt surprised him with a very special superhero cape she'd made. Ever since he's insisted on wearing it to every treatment, surgery, test and appointment.
If you ask him, his super power is saving pets. If you ask me, his mum, his super power is his ability to always, always find the light.
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Round SEVENTEEN: Scan Confusion and Bravery Beads
July 26, 2022 This entry is difficult to write and not for any of the reasons you might think given our situation. We've been so busy...
Round SIXTEEN: Party of Four and the Scan Plan
This visit to the hospital was set to be unlike any we'd had so far as this time we'd have Ella with us as well, at least for part of the...
Round FIFTEEN: Permission to Holiday
After missing the first of Benjamin's chemo appointments, round fourteen, while quarantined for COVID it felt good to know that he'd have...
Sick Kids VS Photoshoot: Patient Ambassador Program
A few months ago a friend connected me with her friend and former colleague who now works for SickKids Foundation. She then put me in...
COVID and Cancer - It's Complicated
I debated whether or not to write about our ongoing bout with COVID as it felt less about Benjamin's journey and more about our...
Team Benjamin the Brave: $87,349.47 for Campfire Circle
A few months ago Nicole, an old friend and former colleague from my experiential marketing days, reached out to me. She let me know that...
Round THIRTEEN: The Beginning of Maintenance and Other Health-Related Drama
The days leading up to Benjamin's first chemo appointment of the Maintenance arm of his treatment were eventful to say the least. The...
Emotional Roller Coaster: From Great, to Bad, to OK
Just shy of one week from hearing the news that Benjamin's cancer had shrunk and that the LCH was not metabolically active we received...
Scan Results: Post Phase TWO Induction
My mum was still here the day after Benjamin had had his scans. We'd all finished dinner together and while David and my mum did the...
Scan Day: Post Phase TWO Induction
Being that it was a big, two-appointment week, my Mum took a COVID test and came from Ottawa to spend nine days with us. Not only did...
Round TWELVE
Twelve. Twelve rounds of chemotherapy pumped into our little boy's body. It's hard to wrap my head around it. While it is medicine and...
Round ELEVEN
Between round ten and round eleven we had a few noteworthy things happen. The first was an ophthalmology appointment at Sick Kids earlier...
Round TEN
The evening before Benjamin's tenth round of chemo we received a very special delivery: replica 'Benjamin the Brave' capes for David and...
Scanxiety
Scanxiety: a term introduced to me by @littlepressco, used to express the massive anxiety oncology patients, parents, partners and loved...
First Week Back to School
All of the emotions were flowing leading up to Benjamin's return to school. It would be his first time there since Christmas break had...
Planning the Return to School
Very recently we received the thumbs up from Benjamin's medical team that he could return to school. This news took us by surprise given...
Round NINE
Mimi arrived just after 7AM to watch Ella so that both David and I could take Benjamin to the hospital for his ninth round of chemo. We...
Round EIGHT
This round was different than the previous seven. The COVID rule of one parent per patient had been lifted and for the first time the...
Round SEVEN and the Importance of Context
We were off to the hospital the morning after receiving what felt like devastating news that we'd be repeating the first phase of...
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